Tuesday, January 19, 2010

Mama Has Hyperemesis Gravidarum (But Only For A While)

I came across Mama Has Hyperemesis Gravidarum (But Only For A While) last night while researching treatments for HG.

The title alone very nearly sent me into tears. At work. Right before a call came in. Two seconds and couple of deep breaths were needed to pull myself together before taking the call (granted that did get my mind off of HG for a little bit though). I don't know why the title affected me like that, other than I know I am still processing all the emotions related to having such a hard pregnancy. It's an ongoing process, but one that needs to be done. I find myself needing to work through all the emotions I pushed aside while simply trying to survive each day and to research possible treatments and prevention techniques (if any) for the next time (which won't be for a little while yet!). So, there might be a few more postings about HG while I go through the process of looking for any and every tidbit of information I can find to see if I can somehow be more prepared for next time. I have a need to share my story - both for my sake and that of those who haven't really ever heard of HG and don't understand it.

I did do some research while I was pregnant because I had no idea what was happening to me. I wasn't getting over the morning sickness like everyone kept promising. I came across some really good sites, my favorite being http://www.helpher.org/. Lots and lots of great information there! Their list of things a hyperemetic mom might experience was such a relief! I wasn't going crazy and my concerns and fears weren't unfounded. That website also provided the info I needed to even know to ask my ob/gyn for a Zofran pump. I hate to think what would have happened if I hadn't gotten that pump. I will always and forever be grateful to the founders of that website and all the women (and men) who contributed their stories, info, and support.

For some reason though, I never came across any of Ashli McCall's materials while I was pregnant - or maybe I was too sick to catch the links to her info. Kind of funny, since it was one of the first links that pulled up last night. She has written another book called Beyond Morning Sickness: Battling Hyperemesis Gravidarum.

I actually came across this one first in my search. The reviews on Amazon are amazing and I plan on buying a copy for myself, one for family, and one for my previous ob/gyn's office. I don't think any of us fully understood what I was going through at the time, and while we made it through, it could have been a lot easier if we had had more information. I was really the only one researching it at the time though and that was with super limited energy.

Ashli also had a blog during one of her pregnancies: hyperemesisgravidarum.blogspot.com. I started reading through it. I want to share the wording in one of her stories that particularly hit home with me:

A friend came over the other day, and we were talking about [HG]. I started to tell her what nights had been like during the thick of it...it was just a description of living with various pumps and alarms... not the worst part of the illness... and yet, I couldn't get through it without bawling and feeling like the wind had been knocked out of me, without feeling like I wanted to run from my own words, my memories, the reality of what had been my life. And for me it had been a few months. For others with other diseases it is years. --hyperemesisgravidarum.blogspot.com

I can totally relate. Surely it wasn't that bad. I mean, I dealt with it just fine at the time, right? The memories of constant purple and blue bruised thighs from having to stick a needle in them twice a day or being scared to go to the grocery store because I didn't know if I could muster up even half the energy needed or of being afraid to even having a short verbal conversation with someone because I knew that it would make me throw up can't really have been how it was, right? Living with family the whole nine months because I couldn't hardly work and James' job offers kept slipping away one by one wasn't really that stressful, was it? Having a doctor who was willing to at least try a Zofran pump, even if he didn't give me any indication of how hard HG would be on me physically or emotionally (not to mention how hard it would be for family who just thought it was morning sickness) was a blessing, right?

Surely it wasn't that bad to push through each day, hoping the end of HG was just around the bend. Realizing it wasn't going to end after the first trimester, or at 16 weeks, or even at the common 20 week mark for most HGers couldn't have been that disappointing or depressing. Knowing that a good day meant I would probably overdo it and would pay for it the next two days wasn't such a bad cycle, right? I mean, at least I had a few good days here and there. Still feeling nauseous for a whole week after Ian was born wasn't so bad, even though I had been promised by other moms that I would feel great right away. Right?

I guess I am trying to figure out where I stood on the horrible pregnancy scale becauase I want to be better prepared for next time around. I also want to know if it was really that bad. I guess there is part of me that is still in denial that it could have been *that bad*. I mean, the doctor didn't ever even call it a high risk pregnancy. And I know I certainly had it much better than several HGers. I wasn't on a weekly hydration schedule. I didn't have to have a feeding tube. I actually didn't even get snubbed that much by people who thought I was just being a wuss (I have heard some horror stories about that). My husband didn't have to cook all his food in the microwave in the garage or sleep in a different bed the whole 9 months (heard stories about that too). Although it was stressful at times, we had family support and a place to live. We didn't lose a house or go in debt over this pregnancy. Even though my normal activities were interrupted, I was able to maintain some of the basics, especially after I got the Zofran pump. I didn't lose my job over my lack of ability to work. No one at work even questioned whether it was really all that bad. They all believed me and supported me - a TREMENDOUS blessing!!! My hubby never told me to suck it up or just to try harder.

And of course, there's the big question: was it worth it? Worth it to endure all that for my little baby? Worth it to see what a good father my hubby is and fall even more in love with him? Worth it to see what joy Ian brings to our lives? YES! Absolutely! I would do it all over again (but with more support this time...haha!) just to have him in our lives. When I was in the midst of it, I certainly did not understand women who went through this four, five, or six times. Two or three I could understand, but not more than that. I understand it now though. Those difficult days become much more of a distant memory all the time and the fun we have with Ian definitely overrides all the hardships we faced (although I am all about reducing hardships for the next time!).

What's even better is I feel like God is telling me that He wants to heal me of this. I hardly even dare write that, not because I doubt His ability or goodness to do so, but because I am afraid of mishearing Him. And yet, I know deep down that I haven't. I have no idea how He wants to do this, but I believe He can - whether through His own power or through treatments. So, while I am waiting on Him to show me, I am also researching HG as much as possible. I would definitely appreciate prayers on this!

I'll leave with this - the most beautiful, precious reward at the end of a long journey (and the start of a new journey!).

10 comments:

  1. wow thanks for sharing your story. I cannot imagine how hard that must have been for you. Pregnancy is hard enough but when you add HG in the mix, whoa, im not sure i could have handled that. Just remember too that every pregnancy is different. this next time around you may have it so easy. But just like you said, Ian is totally worth all of the hardship you endured. Babies are definitely a blessing from God! BTW i absolutely LOVE the pic. it is sooo beautiful.

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  2. Thanks for sharing your story- I had no idea! I'm so glad that you have such a godly attitude/ perspective about the past and future- especially for something so trying. You will be in my prayers.

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  3. Thank you both for your sweet comments! I really appreciate the support. Sometimes it seems like it should all be no big deal, but I do find it theraputic to talk about it and share.

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  4. This post is very encouraging. Just to hear from someone else who knows what a difficult thing this is to go through. I am currently in the ninth week of my second HG pregnancy. We knew we didn't want our child to be an only child, but the thought of another pregnancy was just too much. After years of battles with God, I finally decided to trust him to get me through if HG happened again. Well, it happened again. I think somehow I thought if I really showed God how much I trusted him that he surely wouldn't let this happen to me. I am living with my in-laws, unable to work or take care of our son. My husband visits once or twice a week, but his job prevents him from coming out more often. I just keep hanging on to trusting God to get me through this. I know that in about nine months I will be so glad we did this, but right now I am literally living each second at a time. Though I LOVED my son it took me 6 months to a year after he was born to truly think it was worth it. This time is worse physically, but I have emotional and physical support (neither of which I had last time) so I know I can get through this. I think one of the things that really make me realize how much my friends don't get this is when they call me and tell me all these great things that took away their nausea, like ginger and herbal teas. This is not nausea. It's not even morning sickness. It's a severe, almost life-threatening pregnancy, which requires actual physical and emotional support. Not nausea-controlling tips. And just to let you know, percentages of women with a previous history of HG having it again are very high. So go ahead and get your support system and work schedule worked out, because even though it will be totally worth it, if you do this again chances are you're in for a long nine months!

    Blessings,

    Megan

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  5. Hi Megan! I sure hope you are checking back here for comments because I have no other way of getting a hold of you! Thank you so much for your comments. I am so sorry to hear you are having to deal with HG again! I think it is all of our dream (and hope!) that we never have to encounter it again. I had a recent pregnancy scare...turns out I am not pregnant after all! But you can understand how scary that would be. We aren't prepared for HG again. We need my income right now (hubby and I are both going back to school and working part time).

    I actually had a really helpful HG-related conversation Sunday night at work with a good friend. He's an assistant pastor at a local deaf church and I had asked him his views on when/how God heals. He said, and I have to agree, that he believes God heals everyone, but sometimes that isn't until we are in heaven. In the meantime, sometimes illness or infirmity is for His glory (from John 9 - when Jesus was asked why the man was born blind, He replied it was for God's glory). Hard to feel like puking our guts out is for God's glory, but hearing that from my friend gave me a lot of peace. Like you already have started to experience, there is a really high chance I will have HG again. Knowing it is for His glory really helps - at least right now haha. I don't know if that will be any help to you or not, but I wanted to share it with you! Hang in there...it is so worth it! What you are doing is an amazing thing and I totally believe your kiddos will one day realize what a sacrifice you made for them and love you all the more for it.

    If you do get this comment, feel free to e-mail me at laurajchristian @ gmail . com. I'd love to chat with you more and give you my phone number. Please let me know if there is ANYTHING I can do for you!!

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  6. I posted a comment earlier as Megan. Thanks for the reply! I sent you an email but I'm not sure if you got it.

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  7. I did get it and was so excited to see that you had e-mailed me. I e-mailed you back! I'm not sure why it didn't go through. I will e-mail you back again and try the e-mail on your website.

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  8. Hello, I don't know if you are still reading the comments on this site but I appreciate your honesty and willingness to share. I was looking at the dates and I'm assuming the last entry date is supposed to be Feb. 2010. I have severe HG for the second time. My daughter is 5yrs old and I am currently 13 weeks. I have a Picc Line with TPN (Total Parenteral Nutrition) that feeds me and the baby since I can keep nothing down by mouth. I have this pump going 24hrs/7days week. I also have a Zofran pump. I take prevacid for acid build up and I had to get a new Picc Line last week in the right arm because the one in the left got infected. This is a very difficult condition to have. That is why I find it comforting to hear stories like yours that remind me "there is nothing new under the sun" and I am not alone. Some days are better than others but that's all relative as I'm sure you know. A better day could mean I didn't throw up but my stomach ached all day. I also have ptyalism. Excessive spitting ALL DAY!!! I have to carry a cup everywhere I go. I know the Lord has a will and a purpose. I prayed for this child as Hannah says in the book of Samuel, but I also prayed that HG would stay far away. BUT, here I am. I've had days when I try to figure out why again. Then, I think about the miracle and sweet blessing growing inside me and I say I'll get through it just like I did with my healthy, beautiful daughter. Thank you for sharing your story. We don't suffer in vain there are others who will benefit to know there is hope. This is a great scripture to read and share: 2 Corinthians 1:3-4
    New International Version (NIV)
    Praise to the God of All Comfort
    3 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.

    **God brings us through our sufferings so we can turn around and be a blessing to someone else.

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  9. Hi Blessed Mom! I do still check this blog. I am currently sharing a computer with my hubby (his fried), so I am a little slower in responses, but I am still here! Thank you for sharing your story and for the encouraging words. I am sorry HG is hitting so hard the second time around too! Pytalism, TPN, Zofran pumps...I think we would all be happy to do without it! But these kiddos are definitely worth it. We have decided we are waiting a couple of years to try again, so our first will probably be the same age as your daughter when we try for #2. How is it having a 5 year old? Does she understand why Mommy is sick? I'll be praying strength and grace for you!

    Blessings,
    Laura

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  10. Hi Laura- Have a 5 year old has been a blessing in many ways. I always wanted my children to be no more than 3 years apart but that was not God's plan. It took us about 1 year to concieve our second. Our daughter is estatic. She really understands what's going on at 5 and prayed nightly for a brother or sister. The sickness was difficult for her at first. She was so afraid when I'd throw up because it was so harsh. You know how it is with HG when you need to throw up it is serious. One night my husband wasn't home and I began to throw up, she stood outside the bathroom door and cried saying, "mommy no, daddy please come home, help" she felt helpless. I was SO sick yet so sad that she was affected that way. Yet, I used what that as a teachable moment and explained how I had the same sickness with her. I told her Jesus healed me then and he will heal me this time too. She began to ask questions about how it was with her and she got better little by little. It's still hard for her, but she doesn't dwell on it. I just got out of the hospital on the 7th after being there 4 days for low blood sugar. The doctors were baffled because I'm on TPN so my sugar shouldn't drop to a dangerous 39. My husband brought her to the hospital and she expressed how sad she was that I was there and how she missed me at night. It is hard but it would have been much harder if she were younger in my opinion. Thank you for your prayers and I will be praying that you don't get HG at all with you second. :)

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